My favorite day of the year is always the Third Saturday of September: Auction Day! On this day, every year for the past 22 years, the Amish and Mennonite communities of Lancaster County, Pennsylvania have held a spectacular benefit auction for my parents’ medical clinic, the Clinic For Special Children.
The Clinic For Special Children was founded in 1989 by my parents, Holmes and Caroline Morton, to care for Amish and Mennonite children with rare genetic disorders. When I was seven years old, the Clinic’s traditional post and beam building was built by volunteers in the style and spirit of an Amish barn raising well off a country road, on the edge of a donated cornfield, in the heart of Pennsylvania Dutch country.
Most of my childhood was spent at the Clinic, playing in the lab, in the halls, in the surrounding fields and woods. Throughout college, I worked in the Clinic’s busy lab, running a gene sequencer, searching for the elusive single point gene mutations underlying the rare genetic diseases that affect the Plain people.
The Amish are especially susceptible to genetic disorders because of their small gene pool. Everybody in the modern Amish community is descended from a dozen couples that first came to America from northern Europe in the 1700’s. In genetics, this is known as a population bottleneck. The common misconception is that inbreeding is the cause, but in such a limited gene pool, even if two people aren’t first cousins (a union frowned upon in the Amish church) they are still genetically very closely related, greatly increasing the chances that carriers of rare, recessive gene mutations will meet, marry and have children.
To date, the Clinic has defined 108 different genetic disorders within the Amish and Mennonite communities. Most of these disorders are also found the general population, whom the Amish call “the English,” but at a much lower frequency. For example, one recessive metabolic disorder known as glutaric aciduria occurs in 1 in 200,000 “English” births; in the Amish it’s 1 in 200.
Some people see a stark contrast between modern medicine and Plain culture and I can attest that running a gene sequencer while watching our neighbor plow his field with a team of mules outside my window was a surreal experience. But the Clinic exists because of the Plain people and their beliefs, not in spite of them. The Amish are practical people who demand practical medicine and the Clinic specializes in delivering cutting edge, efficient, personalized, affordable medicine. The Clinic is a microcosm of what healthcare can be and should be.
Clinic costs are extremely low because almost everything is done in house: genetic testing, ultrasounds, electrocardiograms, amino acid levels, blood and urine tests. A third of the Clinic’s budget comes from modest patient fees, a third from donations and a third from the auction.
The Amish self-insure through a program they call “Amish Aid”. Families pay bills out of pocket, in cash. When a sick child has to be admitted to a major medical hospital and the family cannot cover the bill, a collection plate is passed around at church and every family donates as much as they can.
The annual benefit auction is an astonishing community-wide version of Amish-Aid. Everything is donated: handmade quilts, farm equipment, furniture, toys, ponies, buggies and harnesses, food, services; there are too many items to list. The sheer scale of the auction is probably best conveyed in the amount of food: in 2010, 15,000 donuts, 3,000 pounds of BBQ chicken, 2,3000 subs, and 500 gallons of ice cream all sold out before 2 o’clock. In this one incredible day, tens of thousands of Plain people and English supporters turn out and raise a third of the Clinic’s annual operating budget. This is community supported medicine at its best.
This will be my 21st auction; I’ve lived all over the country and have only ever missed one. No matter where I am, I always come home to witness this outpouring of support for my parents’ work. For my family, this day is much more important than Christmas.
My parents have given so much of themselves to the Clinic. Every year on auction day the community gives back. Because of this day, thousands of children have suffered less and led longer and more fulfilling lives. My parents are heroes of medicine and on this day, as every other, I am tremendously proud of them.
Click here to read more about the Clinic and here to see more photos from last year’s auction. My booklet, Plain Genetics, about genomic medicine at the Clinic can be purchased here. All proceeds go to the Clinic. The auction will be held this Saturday at the Leola Produce Auction grounds in Leola, Pennsylvania. Donations to the Clinic can be made at www.clinicforspecialchildren.org.
Beautiful photos Mary. I wish I were there!
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Hi Mary,You and your parents are very special people.Thankyou for this beautiful post and photo’s,
What a wonderful and uplifting post – and what amazing people your parents are. I am fascinated by the Amish and their simple way of life and enormous sense of community and wish that we had more of that same sense here in the UK. Sadly we have become far too materialistic and greedy and community seems to have gone out of the window. But I suppose that if we all contribute in our own small way then that is better than nothing. Best wishes from across the pond.
Thanks, Amber! One of the things I love most about the Amish is that they organize their communities based on the distance a horse and buggy can travel in a day, so that all members can regularly visit each other face to face. Can you imagine if we thought of our communities and neighbors in this way? Cheers, M
What wonderful parents you have! Reading this post was so uplifting – the sharing of what is good in humanity.
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I always hate when someone adds a reply to a three year old blog post of mine, but here I go. I hope I don’t annoy.
I think that the genetic issues in the Amish community result from a founder effect, where the loss of genetic variation in a discrete population when that population is established by a relatively low number of individuals.
A population bottleneck occurs when a large population is wiped, say by some environmental disaster like an asteroid, leaving just a few members of that population alive. Since the bottleneck is formed by a disaster, there is no natural selection, so the population that survives may have a substantially different genotype than the pre-disaster.
The two population effects are similar, but usually a founder effect population is established when a group of organisms move from an old environment to a new one. The bottleneck is completely random.
Done with nitpicking, please don’t smack me. I get really picky with science.
But I loved the story. It reminded me of my daughters, when they were young. They grew up near the Amish country in Pennsylvania, and always asked me to drive out there to buy stuff. Candy if I recall correctly. 🙂